Apoyo social a los cuidadores mayores de personas con la enfermedad de Alzheimer de Portugal

  1. LAURA MUÑOZ BERMEJO 1
  2. RAUL CORDEIRO 278
  3. MARÍA ROSÁLIA GUERRA 3
  4. PATRICIA FERRERO SERENO 4
  5. Valentina Castilla Fernández 510
  6. Salvador Postigo Mota coord. 69
  1. 1 Departamento de Enfermería. Universidad de Extremadura.
  2. 2 CHRC - Comprehensive Health Research Centre, Portugal.
  3. 3 Proyecto Alzheimer Maior. Santa Casa de Misericórdia. Campo Maior. Portugal.
  4. 4 Hospital Virgen del Mar. Madrid.
  5. 5 Consejería de Sanidad y Políticas Sociales. Junta de Extremadura.
  6. 6 Grupo de Investigación Farmacogenómica de Enfermedades Psiquiátricas. Universidad de Extremadura.
  7. 7 VALORIZA – Research Center for Endogenous Resource Valorization, Portugal.
  8. 8 Center for Health Technology and Services Research (CINTESIS), Portugal.
  9. 9 Sistema Extremeño de Ciencia, Tecnología e Innovación (SECTI).
  10. 10 Universidad de Extremadura
    info

    Universidad de Extremadura

    Badajoz, España

    ROR https://ror.org/0174shg90

Montrer des affiliations +
Revue:
Revista ROL de enfermería

ISSN: 0210-5020

Année de publication: 2021

Volumen: 44

Número: 5

Pages: 49-56

Type: Article

DIALNET GOOGLE SCHOLAR

D'autres publications dans: Revista ROL de enfermería

Résumé

Care and assistance to people with Alzheimer’s disease (AD) is provided mainly by family caregivers and in many cases by elderly caregivers. This study aims to analyze the perceived social support of elderly caregivers and its relationship with activities, physical, family and emotional status. METHODS: A convenience sampling of elderly caregivers of people with AD (N=38), ≥ 65 years, was carried out through the Alzheimer Maior Association (Portugal). The measurements included items on the caregiver’s role, the Goldberg General Health Quiz, the APGAR Family Test, and the Duke UNK-11 Scale of Perceived Social Support. RESULTS: There is a relationship between the social support perceived by the caregivers in the study and the sex of the caregiver, the relationship with the caregiver, the time in years and hours they have been caring, the perception of lack of physical strength, doubts about how to care better, and family functionality (p-value<0.05). 57.9 % receive normal social support and 42.1 % receive low social support. CONCLUSIONS: Elderly caregivers of family members with AD who present low social support also present a lack of physical strength, have no doubts about how to care better, have been caring for more than 4 years, between 8-24 hours and present family dysfunction in their environment.

Références bibliographiques

  • Health Care Quality Indicators Project: Patient Safety Indicators Report 2009 [Internet]. 2009 nov [citado 23 de diciembre de 2020]. (OECD Health Working Papers; vol. 47). Report No.: 47. Disponible en: https://www.oecd-ilibrary.org/social-issues-migration-health/health-care-quality-indicators-project_220112312723.
  • Instituto Nacional de Estatística- INE (PT). O Envelhecimento em Portugal: situação demográfica e socioeconômica recente das pessoas idosas. Estatísticas Censitárias e da População. Lisboa; 2018.
  • Ferri CP, Prince M, Brayne C, Brodaty H, Fratiglioni L, Ganguli M, et al. Global prevalence of dementia: a Delphi consensus study. The lancet. 2005;366(9503):2112-7.
  • Niu H, Álvarez-Álvarez I, Guillén-Grima F, Aguinaga-Ontoso I. Prevalence and incidence of Alzheimer’s disease in Europe: A meta-analysis. Neurol Engl Ed. 2017;32(8):523-32.
  • Carvalho MI. Os cuidados familiares prestados às pessoas idosos em situação de dependência: Características do apoio informal familiar em Portugal. Kairós Gerontología. 2009;12(1):77-96.
  • López Gil M, Orueta Sánchez R, Gómez-Caro S, Sánchez Oropesa A, Carmona de la Morena J, Moreno A, et al. El rol de Cuidador de personas dependientes y sus repercusiones sobre su Calidad de Vida y su Salud. Revista Clínica de Medicina de Familia. 2009;2:332-9.
  • Baster Moro J. Adultos mayores en funciones de cuidadores de ancianos. Revista Cubana de Salud Pública. 2012;38(1):168-73.
  • Martins J de J, Albuquerque GL de, Nascimento ERP do, Barra DCC, Souza WGA de, Pacheco WNS. Necessidades de educação em saúde dos cuidadores de pessoas idosas no domicílio. Texto Contexto-Enferm. 2007;16(2):254-62.
  • Figueiredo D. Cuidados familiares ao idoso dependente. Lisboa: Climepsi Editores; 2007.
  • Barbosa A, Figueiredo D, Sousa L, Demain S. Coping with the caregiving role: Differences between primary and secondary caregivers of dependent elderly people. Aging Ment Health. 2011;15(4):490-9.
  • Quinn C, Clare L, Woods RT. The impact of motivations and meanings on the wellbeing of caregivers of people with dementia: a systematic review. Int Psychogeriatr. 2010;22(1):43.
  • Pinquart M, Sörensen S. Differences between caregivers and noncaregivers in psychological health and physical health: a meta-analysis. Psychol Aging. 2003;18(2):250.
  • Goren A, Montgomery W, Kahle-Wrobleski K, Nakamura T, Ueda K. Impact of caring for persons with Alzheimer’s disease or dementia on caregivers’ health outcomes: findings from a community based survey in Japan. BMC Geriatr. 2016;16(1):122.
  • Guedes AC, Pereira M da G. Sobrecarga, enfrentamiento, síntomas físicos y morbilidad psicológica en cuidadores de familiares dependientes funcionales. Rev Lat Am Enfermagem. 2013;21(4):935-40.
  • Garzón Patterson M, Pascual Cuesta Y, Collazo Lemus E de la C. Malestar psicológico en cuidadores principales de pacientes con enfermedad de Alzheimer. Rev Cuba Enferm. 2016;32(3):0-0.
  • Cano VP, Ochoa GM, Ruiz DM. Familiares cuidadores de mayores: una ardua y silenciosa labor: realidad y perspectivas de futuro. Dykinson, SL; 2011.
  • Carretero S, Garcés J, Ródenas F, Sanjosé V. The informal caregiver’s burden of dependent people: theory and empirical review. Arch Gerontol Geriatr. 2009;49(1):74-9.
  • Yin T, Zhou Q, Bashford C. Burden on family members: caring for frail elderly: a meta-analysis of interventions. Nurs Res. 2002;51(3):199-208.
  • Carter JH, Lyons KS, Stewart BJ, Archbold PG, Scobee R. Does age make a difference in caregiver strain? Comparison of young versus older caregivers in early‐stage Parkinson’s disease. Mov Disord. 2010;25(6):724-30.
  • Tomomitsu MR, Perracini MR, Neri AL. Influência de gênero, idade e renda sobre o bem-estar de idosos cuidadores e não cuidadores. Rev Bras Geriatr E Gerontol. 2013;16(4):663-80.
  • de Souza LR, Hanus JS, Dela Libera LB, Silva VM, Mangilli EM, Simões PW, et al. Sobrecarga no cuidado, estresse e impacto na qualidade de vida de cuidadores domiciliares assistidos na atenção básica. Cad Saúde Coletiva. 2015;23(2).
  • Rodríguez BC, Castiñeira BR, Nunes LC. Enfermedad de Alzheimer y calidad de vida del cuidador informal. Rev Esp Geriatría Gerontol. 2019;54(2):81-7.
  • Muñoz-Bermejo L, Postigo-Mota S, De Llanos-Peña F, Casado-Verdejo I. El cuidador mayor de personas mayores. Rev ROL Enferm. 2015;38(12):852-8.
  • Hsiao CL, Chiou CJ. Primary caregivers of home nursing care recipients: Their caregiving experience and related factors. J Nurs Healthc Res. 2011;7(2):127-39.
  • Bell CM, Araki SS, Neumann PJ. The association between caregiver burden and caregiver health-related quality of life in Alzheimer disease. Alzheimer Dis Assoc Disord. 2001;15(3):129-36.
  • Bermejo LM, Cordeiro RA, Carvalho JC, Mota SP. Estrés emocional en cuidadores mayores de personas mayores. Port J Ment Health NursingRevista Port Enferm Saude Ment. 2018;
  • Espín Falcón JC. Factores de riesgo asociados a pacientes con enfermedad de Alzheimer y sus cuidadores principales. Rev Cuba Med Gen Integral. 2020;36(1).
La source de données: Dialnet